Thursday, May 21, 2009

Arizona Update:He's 13 Weeks

It's not a very good picture. I took it through the little plastic window of his stroller because he's sleeping and that is so rare and I didn't want to wake him up. I'm officially "that mom". When people ask, "how old is he?" I say, "13 weeks, oh I mean, 3 months." :p Christopher is growing so fast too. He's already outgrown 4 going on five outfits we brought. We bought him a cute one the other day at Target. He gets taken care of most of the day by people here at The Center which is a nice break and allows some alone and nap time for Ben and I. We have people who fight to see who gets to take care of him next and who can put him to sleep fastest. Today we had another baby come in, but Christopher was WAY cuter and more cuddly. Plus that baby was five or six months old.

Every day here feels like an eternity. People walk by and always say how fast the baby will grow up and how we'll long for the baby days again. It doesn't feel fast and I will have wished we just had the baby days...period!

Ben's hooked up to his chemo pump that he carries everywhere with him and he's started his radiation. The effects are starting to come around and it's very scary for me to watch. He gets sick and tired very easily even though he won't admit it. I'm not used to him being sick and it's frustrating having to sit back and let it happen to him since there's nothing I can do to make it better. I try and let him get enough sleep. I take care of the baby through the night so he doesn't have to (except this was VERY fussy). Ben took his first shower with the pump and it was very frustrating for him. He's got to keep his port area dry and keep water from getting into the I.V. hook-up thingys. AND he's got to have this bag hanging from the curtain rod with his death liquid tube and try to not have that thing tangle!

It's only Day 3 of radiation treatment out of 28 and I feel that I won't make it much less Ben. It's especially difficult because I can't really hug Ben for fear of hurting him where his port is or tugging on his tubing! And we're bed cuddlers and that's hard to do now too. We both used to wake up in the middle of the night together just because we're conditioned from when I was pregnant, but now I'm up by myself and it's lonely.


  1. Okay so I figured out how to post a comment on your site. I'd tried a couple times. I guess I had to sign in. It used to let you sign in on the page, but whatev...I'm glad you are building a support group over there. I wish I could be there to lend a hand. Things are still going well here on the home front. Gus seems to have found new hiding places for when I visit the house, and Merlyn is enjoying his vacation to a new location...

    Wish I could give you both BIG HUGE hugs! Things will get better I'm sure of it! I can't wait to see you guys when you get home... your house feels funny with out you and I miss the option of going and hanging out with you, just a few minutes away.

    Love you guys!

  2. thank you again for taking care of things while we're gone. gus is very good at hiding because believe it or not, he can hide under anything! he also likes to hide in the garage, but you can usually coax him out of there by opening the garage door just a crack. if you open it all the way he will run out.
    i miss hanging out too. i just hang out at the center all day and it's not the same.

  3. We're thinking of you guys so much. I can't imagine what you're going through but just know we care and are praying for y'all:)

  4. You're little guy is SO cute...I'm sure way cuter than the other baby at the center:) He's precious. And 3 months already, wow! That went fast! What a sweet angel to have in your family, especially now, what a blessing.